Twenty-years and counting On July 31 of this year my wife and I will be celebrating our 20th wedding anniversary. I am thankful for her; she is an amazing woman with so many strengths and gifts. Having a child with Down syndrome is not something she, or anyone for that matter, ever imagined but she

A RELUCTANT ACTIVIST I was not planning on having a son born with Down syndrome but I wouldn’t change it for anything. However, there are times when I am either more sane or less insane that allow me to see that there is more to this journey than I had expected. When Treyton was born I didn

Whenever a newly married couple begins to talk about having kids I like to point out that kids don’t come with a return policy. They are not like something you buy and later when buyer’s remorse kicks in you can return. I am fairly sure that most people think I’m a little weird, I

The death of Robert Ethan Saylor haunts me. The fact that very few people seem to have heard about the death of Robert Ethan Saylor haunts me. How many other deaths make the major news channels? A LOT! Think about all of the special interest groups that we hear about on a daily basis yet the young m

There are few people in this world that choose to advocate for others, such as those with Down syndrome, without some strong connection to the disability. I mean this in a relative sense as compared to other. It think it would be interesting to know this statistic but I don’t know what the num

Parents need to know it is going to be okay. The thought that some expectant parents may choose to terminate a pregnancy because they are told their unborn child has Down syndrome is upsetting to me. I know the fear and confusion new parents can experience when they are told that the child they have

I have never been to Alcoholics Anonymous (AA) and by the grace of God alone I am not an alcoholic – the disease does run in my family. However, I no longer drink alcohol (even though there is a barrel of Maker’s Mark bourbon with my name on it in Kentucky). Life got to a point for me th